|Princess C Rocks!|
They changed a light bulb at work, the smallest thing but it annoyed me so much as it makes the room so bright that it brings on an epileptic seizure. I'm not supposed to have light sensitive epilepsy but for the last 3 months with no light bulb in that room I was fine. The day it was changed I had a hellish seizure. I've blogged about my epilepsy before and should explain here that I have absence seizures that last from 10 second to a few minutes.
This happened just before home time, I still wasn't feeling great on the bus to school so as I got there early I took a seat inside and just closed my eyes for 10 minutes and felt a bit better. When Princess C came out I warned her what had happened hoping all would be fine from then on. As it turned out, it was going to be one of the worst evenings I have had in a long time.
I had a seizure on the way home where Princess C had to stop me walking and hold onto me. I had one as we were opening the front door and I couldn't remember the alarm code straight away. I had countless more at home. In the end I tried to sleep on Princess C's bed while she played around me. I thought just lying down and resting would improve things as it often does.
Readitdaddy was going to be late home, a very rare thing, so I had to do dinner. Thankfully there was a microwave meal in the freezer so I could put that on for us and pudding was fruit, and a rare chocolate treat for Princess C for being such a star. I had another seizure during dinner where C had to take my knife and fork off me and place them on the plate.
We made it to bed with very few problems but I couldn't read her a book at bedtime so we picked out a nice book she could read to me, one that she knew all the words too so I wouldn't have to follow the words. She said "look at the pictures mummy and then you will be fine". Into bed she shot and 45mins later readitdaddy was home. I'm not sure I've ever been so pleased to see him.
I went to bed and watched tv, there was little else I could do with my evening, it was a struggle to talk or to think.
At school the children had to make a promise for the term and hers was to look after mummy better when she has a seizure. We had discussed this a week before as I said she looks after me so well, but she felt sad that daddy often takes over and doesn't let her help more. She's only just 6 so she shouldn't be looking after me, but she doesn't understand that.
At school this morning we had a chat to her teacher to tell her about the day before, her teacher also told her how proud she is of her and how grown up. I was almost in tears.
Because of my epilepsy C and I seem to have a very strong bond and she will often look out for me and check I'm ok, there are moments when readitdaddy and C at the same time will both ask if I'm ok.
So I am happy to shout I am the proudest mum ever, even with a tear in my eye.
|smiles all round|